There are places I'll remember… All
my life though some have changed
Some forever not for better…Some have gone and some remain
All these places have their moments ….With lovers and
friends I still can recall
Some are dead and some are living….In my life I've loved
them all
But of all these friends and lovers…There is no one compares
with you
And these memories lose their meaning…When I think of
love as something new
Though I know I'll never lose affection…For people and
things that went before
I know I'll often stop and think about them…In my life
I love you more
John Lennon & Paul McCartney
I think that this song just about says it all…although
I will never
forget the friends and experiences that have brought me to this
point in my life…it’s the bonds that I have forged
with my “parkie” friends that mean the most to me
now. I think that is because when I’m surrounded by others
who carry on the same battle that I do, I can really relax and
know that my situation is far from unique and how good it feels
to be one of the family of PWP’S.
On Saturday, May 25 and Sunday May 26, we held our first “Shake,
Rattle & Roll for Parkinson’s Disease.” We includes
my friend and partner in crime, Holly Angus, proprietor Pat
Sullivan of “Le Vieux Carre” in downtown Peoria
plus the countless others who helped with their time, treasure
and talent to help pull of our most successful PD event.
Saturday began with a symposium presented by the online support
group, PLWP.org This was our second year presenting this round-table
discussion involving Ph.D medical researchers, neurosurgeons,
neurologists, and people who live with pd. Named “PATIENTS
AS PROVIDERS,” this program was held at the University
of Illinois College of Medicine in Peoria, Il. This year’s
program included presentations by Dr. Richard Weber, Ph.D (Associate
Professor of Immunopharmacology and Microbiology) who spoke
on “Parkinson’s: The Present and the Future”
and Dr. Richard Lister, M.D. (Associate Dean for Strategic Planning
and Development) whose speech was entitled: “Our Vision:
A Center of Excellence.” We also heard from Carol Walton,
Executive Director of the Parkinson Alliance about how close
we are coming to finding better treatments and eventually a
way to cure PD. The audience participation in the question and
answer/discussion part of the program was wonderful and intelligent
questions were asked of all three of our participating doctors:
Dr. Rick Weber, Dr. Patrick Tracey (neurosurgeon), and Dr. Jai
Kumar (neurologist). All agreed that this excellent program
was a success.
Then, our group went out to St. Edward School Gym to enjoy a
time of camaraderie and friendship as we attended our “parkie
picnic.”
We celebrated the upcoming marriage of Tom Kelly and Tami McNamera
and the birthdays of Laura Dean (Harley), Ann Campbell (AJ)
and Dr. Rick..
On Sunday morning, bright and early, we were all downtown Peoria
at Le Vieux Carre, a wonderful, 100 year old building that has
been restored by Pat Sullivan to resemble the French Quarter
buildings in New Orleans. This lovely building was covered in
back and red balloons and set up with a variety of tables: food,
registration, welcome, raffle and prizes and did I mention food??
The food was all donated. We were treated to a wonderful and
sumptuous spread including some of the best pastries and breads,
fresh fruit and pasta.
The weather was perfect-breezy and just warm enough and the
crowd was wonderful: considerate and happy and truly committed
to the cause. We had over 200 walkers and cleared (we hope this
is in the ballpark) $15,000.
Amidst balloons and jazz music, everyone listened for their
number to be called out to win a myriad of prizes ranging from
$250 sunglasses donated from Maui Jim (Toad-you’re too
sexy for words in those shades!!) to an overnight stay at the
downtown Holiday Inn City Centre with dinner for 2 at Jim’s
Downtown Steakhouse and a horse-drawn carriage ride to books
by Michael J. Fox, A.J. Campbell and Carol Hurcon from the PD
listserve and handmade Raggedy Anne & Andy dolls made by
PLWP member Jane Ross.
It was all over much too soon. My especial thanks go out to
Carol Walton of the Parkinson Alliance & the Tuchman Foundation
for their kind support and help-always; to Nan & Brenda
of PLWP, and to all those who made the trip here. Thanks also
to my family, friends and sponsors-you made it work!!!!